ALS: enhancing quality of life with Palliative Care

ALS is a progressive neurodegenerative disease that affects the motor neurons responsible for movement, speech, and breathing.While there is still no cure, there is so much that can be done to improve comfort, function, and emotional well-being — not just for patients, but also for their families and caregivers.

In this presentation we

look beyond the diagnosis and focus on living well with ALS — through symptom management, communication support, emotional care, and aligning treatment with what matters most to each individual.We’ll discuss how early integration of palliative care helps patients maintain dignity, autonomy, and hope throughout their illness.

My goal for this session is simple:to share practical, compassionate strategies that we can all use — whether we are healthcare professionals, caregivers, or advocates — to improve the quality of life for people facing ALS.

You can open the link above to listen to the recording of the 2024 ALS Health and Hope Symposium in Florida where Dr. Jasmin Jerez-Marte presented this important topic.